Understanding Patient Advocacy: Who's In Charge of Fixing My Child?
| When doctors diagnosed her two sons with Duchenne muscular dystrophy, Pat Furlong didn't accept "there's no hope and little help" as an answer. In her own words, "Parents have children. They notice little things that just seem to separate their child from other children. They express these concerns to their healthcare providers and are often dismissed for months, or sometimes years. And then, on what was supposed to be an ordinary day, there is a diagnosis, unfamiliar and difficult to pronounce, with a definition that describes the symptoms that have become so familiar. Advocacy is born out of necessity. It presents both challenge and opportunity. It includes speaking up, drawing attention to an issue and directing decision makers toward a solution." Join us to learn more about the importance of patient advocacy and its role within the ever-changing medical landscape. | |||||||||||||||
| October 22nd, 2010 7:00 AM - 9:00 AM | |||||||||||||||
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Doubletree Denver Tech Center - Indigo Room
Map This Location7801 E. Orchard Rd Greenwood Village, CO 80111 |
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Phone:
303-265-9224 Email: customer.service@chsm.org |
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Pat Furlong is the founding president and CEO of Parent Project Muscular Dystrophy (PPMD), the largest nonprofit organization in the United States solely focused on Duchenne muscular dystrophy (DMD). Pat speaks about DMD and related topics at conferences each year worldwide and is an active Board member with the Genetic Alliance and the Muscular Dystrophy Coordinating Committee, U.S. Department of Health & Human Services. She also is a committee member on the Collaboration in Education and Test Translation Program; and serves on the data safety monitoring board for both the Rare Diseases Clinical Research Network and Cooperative International Neuromuscular Research Group. Pat has a B.S. in Nursing from Mt. St. Joseph College and attended graduate school at Ohio State University.